Thank you for viewing our Privacy Policy. This page covers the privacy policy of our website as well as the collection and handling of sensitive data in our Patient Study.
This Privacy Policy describes the policies of Haapaniemi Lab on the collection, use and disclosure of your information that we collect when you use our website (haapaniemilab.org). While our Lab is physically based in Oslo, Norway, we serve information to everyone across the world.
By accessing or using our website, you are consenting to the collection, use and disclosure of your information in accordance with this Privacy Policy. If you do not consent to the same, please do not access or use our website.
We may modify this Privacy Policy at any time without any prior notice to you and will post the revised Privacy Policy on our website. The revised Policy will be effective 180 days from when the revised Policy is posted on our website and your continued access or use of our website after such time will constitute your acceptance of the revised Privacy Policy. We therefore recommend that you periodically review this page.
We collect the following data:
You directly provide us with most of the data we collect. We collect data and process data when you:
We securely store your data in our online database, which is hosted on the secure Hostinger cloud servers, and in emails containing data received from any forms you’ve submitted to us via our Contact page.
We will use the information that we collect about you for the following purposes:
We will not transfer your personal information to any third party without seeking your consent, except in limited circumstances when it comes to Analytics.
We require such third parties to use the personal information we transfer to them only for the purpose for which it was transferred and not to retain it for longer than is required for fulfilling the said purpose.
We may also disclose your personal information for the following reasons: (1) to comply with applicable law, regulation, court order or other legal process; (2) to enforce your agreements with us, including this Privacy Policy; or (3) to respond to claims that your use of the Service violates any third-party rights. If the Service or our organisation is merged with or acquired by another company or organisation, your information will be one of the assets that is transferred to the new owner.
We would like to make sure you are fully aware of all of your data protection rights. Every user of our website is entitled to the following:
The right to access – You have the right to request Haapaniemi Lab for copies of your personal data.
The right to rectification – You have the right to request that Haapaniemi Lab correct any information you believe is inaccurate regarding your own data. You also have the right to request Haapaniemi Lab to complete the information you believe is incomplete.
The right to erasure – You have the right to request that Haapaniemi Lab erase your personal data, under certain conditions.
The right to restrict processing – You have the right to request that Haapaniemi Lab restrict the processing of your personal data, under certain conditions.
The right to object to processing – You have the right to object to how we process your personal data, under certain conditions.
The right to data portability – You have the right to request that Haapaniemi Lab transfer the data that we have collected to another organisation, or directly to you, under certain conditions.
If you make a request, we have one month to respond to you. If you would like to exercise any of these rights, please contact us via our Contact form.
Cookies are small text files placed on your computer to collect standard Internet log information and visitor behaviour information. When you visit our website, we may collect information from you automatically through cookies or similar technology.
For further information about cookies, visit allaboutcookies.org.
To learn more about how we use cookies and your choices in relation to these tracking technologies, please refer to our Cookie Policy.
Our Service may contain links to other websites that are not operated by us. This Privacy Policy does not address the privacy policy and other practices of any third parties, including any third party operating any website or service that may be accessible via a link on the Service.
We strongly advise you to review the privacy policy of every site you visit. We have no control over and assume no responsibility for the content, privacy policies or practices of any third party sites or services.
The security of your information is important to us and we will use reasonable security measures to prevent the loss, misuse or unauthorised alteration of your information under our control.
However, given the inherent risks, we cannot guarantee absolute security and consequently, we cannot ensure or warrant the security of any information you transmit to us and you do so at your own risk.
We keep our Privacy Policy under regular review and place any updates on this web page. You can find the last-updated date at the top of this policy.
If you have any questions about our Privacy Policy, the data we hold on you, or you would like to exercise one of your data protection rights, please do not hesitate to contact us via our Contact form.
Should you wish to report a complaint or if you feel that Haapaniemi Lab has not addressed your concern in a satisfactory manner, you may contact the Norwegian Data Protection Authority.
As part of our patient study on inborn errors of immunity, we collect and process sensitive personal data and biological samples from participants. The purpose of this study is to better understand why certain gene defects cause serious conditions and to explore potential therapies and gene correction strategies.
For questions about the study or consent, please contact Dr Emma Haapaniemi via our Contact page.
For questions about data protection, you may contact the UiO Data Protection Officer (personvernombud) at [email protected], or Sikt Data Protection Services at [email protected] / +47 53 21 15 00.
For more information about the study, please visit our research study page.
Som en del av vår pasientstudie om medfødte feil i immunforsvaret samler vi inn og behandler sensitive personopplysninger og biologiske prøver fra deltakerne. Formålet med studien er å få bedre forståelse for hvorfor enkelte genfeil fører til alvorlige sykdommer, og å utforske mulige behandlingsformer og strategier for genkorrigering.
For spørsmål om studien eller samtykke, vennligst kontakt Dr. Emma Haapaniemi via vår kontaktside.
For spørsmål om personvern kan du kontakte personvernombudet ved Universitetet i Oslo på [email protected], eller Sikt personverntjenester på [email protected]
/ +47 53 21 15 00.
For mer informasjon om studien, se vår forskningsside.